After naming the distortions that have shaped how disabled and neurodivergent people are seen in the church in Part 1 of this study, we can turn to what Scripture actually says about the Image of God — and the picture is far more expansive, embodied, and hopeful than many of us were taught.
For years, disabled and neurodivergent people have been told—directly or indirectly—that their bodies sit uneasily within the doctrine of the Image of God. At a recent disability conference, I explored why these distortions persist, and why Scripture itself tells a very different story. Below is the first movement of that study.
I’s 7.19 am, I’m on the train, and I’m heading to The Living Well in Nonington, Canterbury. It feels strange to write that sentence as it carries more weight than a simple blog post entry. This is something I have longed for, as I prepare to give a bible study at a disability workshop. I’ve not publicly spoken outside of church in years, yet here I am, reading my notes, rehearsing, and trying to steady my anxiety.
The Church of England, through the General Synod, has approved the new Clergy Conduct Measure, and I felt something I didn’t expect. Relief. Not because the system is perfect or harm will suddenly disappear. Relief because the Church is naming what many of us have lived through for years. It’s listening and acting.
The Church of England released the Fearfully and Wonderfully Made report in February this year, but I know many have still not read it, even though it’s one of the most important pieces of research on disabled and neurodivergent clergy the Church has ever commissioned. It shapes how I live as a disabled Christian with FSHD and autism, my children and disabled friends lives, my calling and ministry, and how I navigate the ordination process.
I’ve mentioned it many times here but I realised I’ve never actually broken it down or explained it in a way that helps people understand what it says, why it matters, and how it affects real lives for those who haven’t read the seventy‑three page document. This post is my attempt to do that. A guide for anyone who wants to understand disability wellbeing in the Church of England.
Tomorrow we gather to honour my curate, Sue at her thanksgiving service. 175 people have signed up. Our church fits around 140 – 150, and more will likely arrive. The hall across the road is our overflow space, livestreaming the service for those unable to fit in the church. It will be a big day. It should be. She was an incredible presence.
Having a disability means I see other people’s privilege. It’s not loud or aggressive. It sits in the background of everyday life, unnoticed by the people who benefit from it, have no idea they do it, and pretend they don’t when they do something wrong. It is often an invisible barrier.
Over the last few months I’ve written about equality and equity, accessibility and usability, independence and autonomy, and survivors and victims. These are topics that people often confuse, yet the gap between them is where disabled people live. Those gaps are important. The difference needs to be discussed. This time, I wanted to discuss presence vs participation.
World FSHD Day has arrived again. Despite posting on Facebook each year, I last wrote about it here in 2018, and looking back now is like opening a time capsule. I knew my condition and feared the future but didn’t understand it yet. I walked, even when it was difficult, constantly fell, experienced pain and vulnerability, and felt trapped in my body.
My FSHD is different now. I no longer walk. I still fall, but it’s progressed to my core. The pain, vulnerability and trapped feeling have deepened in ways I never imagined. Everything I was worried about has now occurred and I've been living with it for several years. That’s the nature of FSHD. It’s not just degeneration, but progression.
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Being a victim and being a survivor sound similar, yet the difference determines how people treat you, hear you, and decide whether your story is valid. This difference has come up in several conversations recently, from ordination discussions, the current CoE safeguarding audit, and general chats. This has caused me to reflect on what I name, why I name it, and how I understand the harm I have survived.
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"The key to human flourishing is within Communities that flourish; at the heart of God in all of us. It is vital that the Church is equipped with the tools to respond effectively and with compassion.”
The Most Revd and Rt Hon Justin Welby, Archbishop of Canterbury
The realisation in my previous post on Ableism and of continued oppression within the timeframe of positive action hit hard.