Friday, 29 November 2019

Struggling to Walk

Having FSH Muscular Dystrophy has it’s highs and lows.

The last 24 years have seen my physical health change so dramatically.

I suppose that comes with the territory of having a degenerative condition.

The thing is it is never fully clear how far the condition will take you. The only thing that is fully clear with people who have FSH is that it affects everyone differently.

The condition isn’t even linked with families.

Although it is genetically passed from generation to generation each person is affected differently.

Wednesday, 27 November 2019

My Little Chef - "Piggy" Pie

With Will experimenting and looking for a new recipe last week it has been nice that he's gone back to a winter family favourite this week!

Hannah doesn't eat a lot of meat but she does enjoy pork when we do have it. However, Will had the idea of doing Shepherds Pie. After discussing the naming of both Shepherds Pie and Cottage Pie he decided it would work perfectly well for a "Piggy" Pie. 

Saturday, 23 November 2019

Our Week in Home Ed

Some of you may have noticed that there wasn't a home ed post last week. 

To be honest Home Ed went out the window the last 2 weeks because Will has been unwell. 

He was super tired the first week and looked pale so ended up sleeping a lot. Then this week he ended up with a stomach bug that put him out of action for a few days.

However, we have managed to do a fair bit to catch up. So here's what we managed to do: