Disability Sunday: The Disturbing Truth

Disability Sunday is next week. For the first time, I’m pleased to say, my church will theme a service around it, and I’ll be preaching.

Sleeping with FSHD: When Your Body Wants to Move but Can’t

The more my FSHD progresses the more sleep becomes complicated for me. I’ve written before about pain, anxiety, and the long nights where my body refuses rest. Something new has crept in. I say it’s new, it’s been happening more and more over the last two years and is now a problem. It’s subtle, but it’s constant, and it’s becoming one of the hardest parts of sleeping with FSHD.

Revamping Old Blog Posts

I started blogging in 2010. I was a fresh, new, born again Christian who had spent years searching for faith while being repeatedly battered by Christians. The healing narrative was always pushed. I was trying to justify why I had a horrible health diagnosis. If I ventured into churches I was stopped, prayed for, and turned into a healing story for God’s magnificent miracles. When I wasn’t healed, I was blamed. I hadn’t believed enough. I wasn’t giving myself over to God and Jesus. Typical institutional harm that many disabled people endure. I tried several Alpha Courses. I was theologically minded even then, so I asked complex questions. No one likes being challenged, especially those who valued Scripture over theology. I was kicked out and blamed for my attitude. When I finally connected with God I wanted to document the journey. A friend suggested I start a blog.