I silently celebrated thirty years since I was first diagnosed with a condition on Saturday.
It’s a strange milestone. It’s not a birthday or anniversary, but a reminder of a moment that changed my life. I was thirteen when a doctor told me I had Polymyositis, an autoimmune condition that didn’t fit my age, body, or story. Knowing what we know now, I can see why they said it, it partially explained why my muscles were weakening, I walked differently, and struggled. They told me I might not live past sixteen. At thirteen, I knew what that meant, but I didn’t understand it — not the way I do now.


