Living With Photosensitive Skin: When Sunlight Turns Against You

I have written about almost every part of my body and health over the years. I have covered ASD, various diagnoses, mental health struggles, FSHD at every stage, disability, harm, thirty years of lived experience, and even personal battles like alcoholism and staying sober. Yet somehow, I have never written about the one condition that has followed me quietly through most of my life. It affects me all year round, although far more in warm weather. Polymorphic Light Eruption.

[Image 2. A patch of skin with redness and small raised bumps. The area looks inflamed and irritated, showing the typical reaction pattern of my photosensitive skin condition.]

Accessibility vs Usability

People often believe that if a space is accessible, it must be usable. These words sound similar, but they do not mean the same thing. Accessibility is the presence of something. Usability is the ability to use it safely, independently, and without barriers. The difference becomes clearer when you live with a disability and spend your life navigating the gap between the two.

A Pentecost Study: Wind

 A Pentecost Study: Part 3 - Wind

“Suddenly a sound like the blowing of a violent wind came from heaven and filled the whole house where they were sitting.” (Acts 2:2)

Wind is one of the oldest and most mysterious images of God’s presence. In Hebrew, the word ruach means wind, breath, or spirit — the invisible movement that gives life. In the beginning, the Spirit of God hovered over the waters (Gen. 1:2), stirring creation into being. Later, God breathed into Adam’s nostrils the breath of life (Gen. 2:7). The same breath that moves the air also animates the soul. Wind is not seen, but its effects are felt — it moves, fills, and transforms.